Cool blogs and resources around limb difference
There are so many cool blogs, support organisation and resources out there for the limb difference community, that we thought we’d pull them all together in this one handy guide!
Whether you’re looking to connect with others, to ask questions, to hear about different people’s experiences, or simply to be entertained, you’ll find all the inspiration you need right here.
Know a great one we’ve missed? Then please drop us an email to hi@yourkoalaa.com and we’ll get on the case.
Inspirational people and blogs:
Alex Lewis Trust
​When Alex had a serious reaction to a Strep A infection in 2013, he was left fighting for his life. Against all odds he survived and went on to spend the next seven months in hospital, where he underwent a quadruple amputation and extensive skin grafts and facial reconstruction. Upon leaving hospital, Alex’s life completely changed. Having found a new sense of adventure, he is now a successful entrepreneur and inspirational public speaker, who says he didn’t just survive - he started truly living!
Hope for Harmonie
Harmonie-Rose was struck down with Men-B at 10 months old, given a less than 10% chance of survival, you can follow her remarkable recovery as a quadruple amputee here.
Stump Kitchen
Stump Kitchen celebrates body diversity and gluten free, vegan cooking! Founded by Alexis, who was born without a left hand, the YouTube channel and blog showcase the interesting and 'Stumptastic' ways she uses her body when cooking.
Facebook Groups
Symbrachydactyly
For people with, or who have, a child or family member with Symbrachydactyly. A place to talk and share experiences.
Amniotic Band Syndrome ABS
For all those who have been born with, or know people who suffer from, this rare condition.
Charities / support organisations
Reach
REACH is the UK’s leading charity providing support and information to parents and their children affected by upper limb difference. It is a friendly, caring place offering fun activities to encourage Reach children to aim higher.
Doulas Bader Foundation
The Douglas Bader Foundation exists to advance and promote the physical, mental and spiritual welfare of persons who are born without or have lost one or more limbs, or are otherwise physically disabled. It was formed in honour of Sir Douglas Bader in 1982 by family and friends – several of whom had flown side by side with him during World War 2.
Limbbo Foundation
Limbbo was set up to help limb difference children and their families. The team want to create smiles on the faces of kids who despite being unbelievably brave haven't had the easiest start in life and to reassure parents that they are not alone. They are aiming to create a community of Limb Difference families who can meet up, chat, play together, and create friendships with other people in a similar situation.
